TIPS FOR
CAREGIVERS
I DON’T HAVE SICKLE CELL, BUT MY LOVED ONE DOES. WHAT CAN I DO TO OFFER SUPPORT?
There are many ways to support loved ones throughout their journey with sickle cell.
MAPILLAR
Caregiver
HAJAR
Actual Oxbryta patient
- Learn as much as you can about sickle cell
- Help find supportive healthcare providers who understand sickle cell and who stay up-to-date with developments in the care of sickle cell
- Encourage your loved one to schedule and keep regular medical appointments. Attend appointments with them for support
- Get connected to local and/or national sickle cell organizations and advocates
- Stay positive. Help your loved one find ways to avoid or manage stress at home, school, or at work
- Listen a lot. Ask your loved one to tell you the ways in which they would like to be supported
- Ask for and accept additional help when needed, for yourself and for your loved one
"I enjoy time with my family and my kids—it’s something that is truly priceless."
– ARELYS
Actual Oxbryta patient
ANDREW
Caregiver
ARELYS
Actual Oxbryta patient